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書名 Ethics and newborn genetic screening : new technologies, new challenges / edited by Mary Ann Baily and Thomas H. Murray
出版項 Baltimore : Johns Hopkins University Press, 2009
國際標準書號 0801891515
book jacket
館藏地 索書號 處理狀態 OPAC 訊息 條碼
 傅斯年圖書館西文圖書區  RJ255.6.D55 E84 2009    在架上    30530001032929
說明 xvi, 354 p. ; 24 cm
附註 Includes bibliographical references and index
Overvies / Mary Ann baily and Thomas H. Murray -- Fair distribution of newborn screening costs and benefits / Mary Ann Baily -- Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse -- An advocate's perspective on newborn screening policy / Jannine De Mars Cody -- Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross -- Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton -- State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen -- Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell -- The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.] -- What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.] -- Research for newborn screening : developing a national framework / Jeffrey R. Botkin -- Ethical and policy issues involving research with newborn screening blood samples / Karen J. Maschke -- Parental permission for research in newborn screening / Jeffrey R. Botkin -- Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin -- Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond -- What can we do to shape the future of newborn screening? Conclusions and recommendations / Mary Ann Baily and Thomas H. Murray
主題 Genetic disorders -- Diagnosis -- Moral and ethical aspects
Newborn infants -- Diseases -- Diagnosis -- Moral and ethical aspects
Genetic screening -- Moral and ethical aspects
Genetic Diseases, Inborn -- diagnosis
Neonatal Screening -- ethics
Genetic Screening -- ethics
Health Policy
Infant, Newborn
Alt Author Baily, Mary Ann
Murray, Thomas H., 1946-
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