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Title Biobanks : governance in comparative perspective / edited by Herbert Gottweis and Alan Petersen
Imprint Abingdon, Oxon [England] ; New York, N.Y. : Routledge, 2008
book jacket
LOCATION CALL # STATUS OPACMSG BARCODE
 人文社會聯圖  QH441.2 .B43 2008    AVAILABLE    30660020059577
 Fu Ssu-Nien WTN LANG BK  QH441.2 B615 2008    AVAILABLE    30530001072271
Descript xi, 234 p. : ill. ; 25cm
Note Includes bibliographical references and index
Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen -- Biobanks in action : new strategies in the governance of life / Herbert Gottweis -- The rise and fall of a biobank : the case of Iceland / Gísli Pálsson -- Estonia : ups and downs of a biobank project / Rain Eensaar -- Patient organizations as the (un)usual suspects : the biobanking activities of the Association française contre les myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer -- "This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider -- Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher -- Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis -- UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen -- Biobanks and the biopolitics of inclusion and representation / Richard Tutton -- The informed consenters : governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken -- Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen -- Governing through biobanks : research populations in Israel / Barbara Prainsack
Subject Human genetics -- Databases -- Moral and ethical aspects -- Cross-cultural studies
Biobanks -- Government policy -- Cross-cultural studies
Biobanks -- Political aspects -- Cross-cultural studies
Databases, Genetic -- legislation & jurisprudence
Confidentiality -- legislation & jurisprudence
Databases, Genetic -- ethics
Public Policy
Alt Author Gottweis, Herbert, 1958-
Petersen, Alan R., Ph. D
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