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Author Taylor, Mark, 1973-
Title Genetic data and the law : a critical perspective on privacy protection / Mark Taylor
Imprint Cambridge ; New York : Cambridge University Press, 2012
book jacket
 Euro-Am Studies Lib  344.04196 T2162 2012    DUE 09-03-22  -  30500101437567
Descript xiii, 232 p. ; 24 cm.
Series Cambridge bioethics and law
Cambridge bioethics and law
Note "Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection"-- Provided by publisher
1. Introduction -- 2. Privacy -- 3. Genetic data -- 4. The law -- 5. Data in common -- 6. Anonymity -- 7. Human tissue -- 8. Genetic discrimination -- 9. Potential, promise and possibility.
Subject Medical genetics -- Law and legislation
Medical records -- Access control
Genetic engineering -- Law and legislation
Biotechnology -- Law and legislation
Human chromosome abnormalities -- Diagnosis -- Law and legislation
Human genetics -- Government policy
Privacy, Right of
Data protection -- Law and legislation
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