Record:   Prev Next
Author Burke, Wylie
Title Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit
Imprint Cary : Oxford University Press, Incorporated, 2011
©2011
book jacket
Descript 1 online resource (223 pages)
text txt rdacontent
computer c rdamedia
online resource cr rdacarrier
Note Cover -- Contents -- 1. Making Good on the Promise of Genetics: Justice in Translational Science -- 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo -- 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter? -- 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science -- Commentary on the Discovery Phase of Research -- 5. Early Assessment of Translational Opportunities -- 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing -- Commentary on the Development Phase of the Translational Cycle -- 7. Integrating Genetic Tests into Clinical Practice: The Role of Guidelines -- 8. Genomics and the Health Commons -- Commentary on the Delivery Phase of the Translational Cycle -- 9. The Role of Advocacy in Newborn Screening -- 10. What Outcomes? Whose Benefits? -- Commentary on the Outcomes Phase of the Translational Cycle -- 11. Bringing the "Best Science" to Bear on Youth Suicide: Why Community Perspectives Matter -- 12. Conclusion -- Index -- A -- B -- C -- D -- E -- F -- G -- H -- I -- J -- K -- L -- M -- N -- O -- P -- R -- S -- T -- U -- V -- W -- Y -- Z
This book examines ethical and social issues that arise in the conduct of genetic research, from the discovery phase, through development and delivery research, to health outcomes. The authors argue that research at every phase needs to be responsive to community needs to assure public health benefits and reduce, rather than exacerbate, health disparities
Description based on publisher supplied metadata and other sources
Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2020. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries
Link Print version: Burke, Wylie Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit Cary : Oxford University Press, Incorporated,c2011 9780195390384
Subject Human genetics -- Research -- Moral and ethical aspects.;Genomics -- Research -- Moral and ethical aspects.;Genetic screening -- Moral and ethical aspects
Electronic books
Alt Author Edwards, Kelly A
Goering, Sara
Holland, Suzanne
Trinidad, Susan Brown
Record:   Prev Next