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書名 Big data, health law, and bioethics / edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser
出版項 Cambridge, United Kingdom ; New York, NY : Cambridge University Press, 2018
國際標準書號 9781107193659 (hardback)
1107193656 (hardback)
9781108449670 (paperback)
1108449670 (paperback)
book jacket
館藏地 索書號 處理狀態 OPAC 訊息 條碼
 人文社會聯圖  RA425 .B54 2018    到期 02-03-22    30660020194002
 歐美所圖書館  362.1 B4805 2018    到期 03-26-22  -  30500101562257
說明 xvii, 354 pages : illustrations ; 23 cm
text txt rdacontent
unmediated n rdamedia
volume nc rdacarrier
附註 Big data and individual autonomy in a crowd / Barbara J. Evans -- Big data's epistemology and its implications for precision medicine and privacy / Jeffrey M. Skopek -- Correlation vs. causation in health-related big data analysis : the role of reason and regulation / Tal Z. Zarsky -- Big data and regulatory arbitrage in healthcare / Nicolas P. Terry -- The future of pharmacovigilance : big data and the False Claims Act / Efthimios Parasidis -- Big data's new discrimination threats : amending the Americans with Disabilities Act to cover discrimination based on data-driven predictions of future disease / Sharona Hoffman -- Who's left out of big data? How big data collection, analysis, and use neglects populations most in need of medical and public health research and interventions / Sarah E. Malanga, Jonathan D. Loe, Christopher T. Robertson, Kenneth S. Ramos -- Potential roadblocks in healthcare big data collection : Gobeille v. Liberty Mutual, ERISA, and all-payer claims databases / Carmel Shachar, Aaron S. Kesselheim, Gregory Curfman, Ameet Sarpatwari -- Avoiding overregulation in the medical Internet of things / Dov Greenbaum -- Data policy for Internet of things healthcare devices : aligning patient, industry, and privacy goals in the age of big data / Marcus Comiter -- Thought-leader perspectives on risks in precision medicine research / Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna -- From individual to group privacy in biomedical big data / Brent Mittelstadt -- Big data and informed consent : the case of estimated data / Donna M. Gitter -- Is there a duty to share healthcare data? / I. Glenn Cohen -- Societal lapses in protecting individual privacy, the common rule, and big data health research / Laura Odwazny -- The common rule and research with data, big and small / Liza Dawson -- Big data, HIPAA and the common rule : time for big change? / Margaret Foster Riley -- Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations / Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss -- Big data and human medical judgment : regulating next-generation clinical decision support / Jeffrey M. Senger, Patrick O'Leary -- Medical malpractice and black-box medicine / W. Nicholson Price II -- Big data & intellectual property rights in the health and life sciences / Timo Minssen, Justin Pierce -- The pathologies of data-generating patents / Ted Sichelman, Brenda M. Simon
Includes bibliographical references and index
"When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt healthcare (and the healthcare system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the healthcare sphere, as well as what we can learn from other sectors."-- Back cover
鏈接 Ebook version : 9781108153645
主題 Data mining
Computational biology -- Methods
Big data
Medical informatics -- Data processing
Medical records -- Data processing
Data Mining
Health Policy
Legislation, Medical
Bioethical Issues
Privacy
United States
Alt Author Cohen, I. Glenn, editor
Lynch, Holly Fernandez, editor
Vayena, Effy, 1972- editor
Gasser, Urs, editor
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